Informed Consent in Predictive Genetic Tes...

Bild: 9783319174150 | Informed Consent in Predictive Genetic Testing | A Revised Model | vii

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Beschreibung

This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource.
Included in the coverage:The science behind PGT.
Understanding genetic risks and probability.
The history of informed consent.
Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety.
Applications of the model in DTC and pleiotropic genetic testing.
Implementation of the revised model, and assessing its effectiveness.

A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.

Über den Autor

Jessica Minor is an assistant professor of health sciences at Bob Jones University, where she teaches public health, global health, and medical ethics. She received her doctoral degree in health care ethics from Duquesne University. Previously, she was a member of the ethics committee at the University of Connecticut Health Center and an adjunct faculty member of Medical Ethics for UConn's medical school. Dr. Minor's main focus is genetic ethics, medical ethics, and patient understanding of the genetic testing and counseling process.

Zusammenfassung

Presents a revised model of informed consent for predictive genetic testing

Discusses background and developments of informed consent in medical research and practice

Applies revised model of informed consent to pleiotropic and direct-to-consumer genetic testing

Applies the principles of patient safety to informed consent for predictive genetic testing

Includes case studies and discussions applicable to today's genetic testing decisions?

Includes supplementary material: [...]

Inhaltsverzeichnis

Introduction.- Predictive Genetic Testing.- The History and Components of Informed Consent.- Revised Model of Informed Consent.- Application of the Revised Model.- Conclusion.

Details

Erscheinungsjahr:	2015
Fachbereich:	Angewandte Psychologie
Genre:	Geisteswissenschaften , Kunst , Musik , Psychologie
Rubrik:	Geisteswissenschaften
Medium:	Buch
Inhalt:	vii 232 S.
ISBN-13:	9783319174150
ISBN-10:	3319174150
Sprache:	Englisch
Herstellernummer:	978-3-319-17415-0
Einband:	Gebunden
Autor:	Minor, Jessica
Hersteller:	Springer International Publishing
Verantwortliche Person für die EU:	Springer Verlag GmbH, Tiergartenstr. 17, D-69121 Heidelberg, juergen.hartmann@springer.com
Maße:	241 x 160 x 18 mm
Von/Mit:	Jessica Minor
Erscheinungsdatum:	25.06.2015
Gewicht:	0,529 kg

Artikel-ID: 104834530